Category Archives: Advance Care Planning

Window Into Death

Have you ever seen a dead body?

Have you thought about about what you would like to have happen with your body once you have died?

Have you shared those thoughts with someone?

Here is  a window into all of that as told in the context of a family, Lynch and Sons, and their Funeral Direction services.  Through their story we learn about how caring for the dead is just as much about caring for the living.

I personally did not know all of elements that I saw in this video.  I’m glad I watched it. It has, interestingly, given me a greater sense of ease imaging that my family members were treated with the same reverence and respect.

I hardly remember my Grandfather’s funeral.  I was a young adult, yet the memories are very vague.  Curiosity about why I don’t remember.

When my Nagymama (Hungarian Grandmother) died, I did not travel to Hungary for the funeral.  I have been to her grave site several times and appreciate being able to connect with her there.

When my Grandmother died, I had just spent 10 days with her knowing she would die soon, but without knowing exactly when.  I left, saying goodbye, knowing I would never see her alive again.  That goodbye was one of the hardest things I’ve ever done in my life.  She fell days later and died rapidly after that. Because I just had the ten days with her, I opted not to fly back for her funeral.  Having now studied death and grief, I wish I had flown back.  I didn’t appreciate then the value in seeing the body and saying goodbye once again.

I say these things not to advocate for burial, cremation, or to say you should have an open casket.  I do however now see the value in ritual and the need for mourning.  Mourning is grief made public.  It is the outward expression of bereavement and our grieving process needs that.

I invite you to watch this video and consider what you would like for yourself when you die.  And I invite you to step into conversations with those that matter in your life about what they want.  I encourage you to have a ritual – whatever resonates in the context of you and your loved ones.

I have done some thinking in the context of Advanced Care Planning about what I would like. I’ve gone as far as saying I want to be cremated.  I realize now I want to consider a few more details as well.  Not with the intention of burdening my family, but rather to open space for some ease at a time when there will be enough “hard”.

Some of you who read this might be saying “Is she obsessed with death?”   No.  I don’t spend every waking minute thinking about what it will be like to die (who knows!) nor do I spend inordinate amounts of time thinking about what I want when I die.  I’d like to live a long life – there is much I still want to do – yet I find some peace in this moment knowing I’ve looked through the window into my own death. It helps me live this life.  It gives me a sense of being on purpose – of taking responsibility for my living by giving some consideration to my death.

This video was produced in 2007.  You will see dead bodies being prepared for either burial or cremation.  You will hear the story of parents preparing for the death of their child.  Of a niece caring for her aunt in a hospice setting.  Of a family that has dedicated its energy to serving the dead and the living. I’ve imbedded the first part of the video below.  To see it in its entirety, I encourage you to go to the PBS FRONTLINE Website and watch The Undertaking. 

Watch The Undertaking on PBS. See more from FRONTLINE.

 

 

Text and Images Copyright © Dr. Catherine Hajnal 2011, 2012, 2013

 

Part 1: Advanced Care Planning

In the work that I do with hospice and as I talk about death in other contexts as well, one of the topics that repeatedly comes up is advance care planning.  My awareness has increased around the value of having a plan and a recognition that the pieces I currently have in place, a will and living will, do not feel sufficient for me.  So to be in integrity with my own ideals/values, what I say, and how I show up in the world, I’m embarking on a journey with my desired outcome of having completed an Advanced Care Plan.  I invite you to come on this journey with me – this is both a process – involving questions, conversations, reflections – and a likely set of documents.  In this blog I’ll share my planning process and what resources I use along the way.

So what is Advance Care Planning?

Here are the two main documents I am using as I begin this journey and what they say Advance Care Planning is about.

1) Speak Up:  Start the conversation about end-of-life care published by the Canadian Hospice Palliative Care Association. 

Advance care planning is a process of reflection and communication, a time for you to reflect on your values and wishes, and to let others know your future health and personal care preferences in the event that you become incapable of consenting to or refusing treatment or other care.

Advance care planning means having discussions with family and friends, especially your Substitute Decision Maker – the person who will speak for you when you cannot. It may also include writing down your wishes, and may even involve talking with healthcare providers and financial and legal professionals.

You may never need your advance care plan – but if you do, you’ll be glad that it’s there and that you have had these conversations, to make sure that your voice is heard when you cannot speak for yourself

2) My Voice:  Advanced Care Plan published by the BC Ministry of Health as a provincial guide for advance care planning.

Having a voice in decisions about your health care treatments is important.  There may come a time when, due to illness or injury, you are incapable of expressing your treatment wishes to health care providers.  By planning in advance, you can be sure that your family, friends and/or health care providers know your wishes, and can ensure these wishes are followed.

Here’s why I want to do an advanced care plan:

  1. I believe that talking about death informs how I want to LIVE my life.
  2. I’ve heard many stories of how families struggle to make health-based decisions when a loved one is incapacitated due to illness or injury.  I know I can’t alleviate the struggle completely, but I certainly believe I can support my family by having conversations with them now, in the present moment, that will make my desires clear and help to inform their decisions later.
  3. I want to be responsible with how my health care dollars are spent. Unnecessary procedures in the forms of ones I am not wanting to have add to the burden on the health care system.

In the coming months I’ll share what unfolds for me in my advance care planning process in the hopes that helps to inform your process.  For now I invite you to get a hold of the documents/workbooks I’ve highlighted above and think about you and your family/friends might benefit from energy you put in to advance care planning.

 

NOTE:  In locating these documents one of the things I’ve learned thus far is that there are a few versions of the My Voice floating out there.  From what I can tell the most recent version is Feb 2012.  I found it through the CHPCA website.  They have links to other planning documents in additional to their Speak Up and the VCH My Voice. Here’s the link to where their planning section starts.

 

 

Text and Images Copyright © Dr. Catherine Hajnal 2011, 2012